March 20, 2018 @ 2:24 PM
THERAPIES TO PRESERVE VISION IN USHER SYNDROME
March 13, 2018
Monte Westerfield, PhD
In this USH Talk, Dr. Monte Westerfield presents research on animal models of Usher syndrome. This research shows that a specific type of cellular stress is responsible for degeneration of photoreceptors and inner ear cells. These discoveries provide strategies for preclinical testing of therapies to prolong vision in persons with Usher syndrome.
Click HERE to watch the video. Thank you to Professor Westerfield and our friends at Usher Syndrome Coalition for sharing this exciting update with everyone!
July 27, 2017 @ 5:18 PM
Brew Fest raises funds to fight Usher syndrome
By Christopher Andersson North County Outlook
Local Jerry Brogan, left, speaks with Molly O'Malley, who works for New Belgium Brewing of Colorado at the Arlington Brew Fest on July 22.
The Arlington Brew Fest returned for a second year, bringing many breweries to Arlington's Legion Park and raising funds for research for a cure of Usher syndrome on July 22.
This is the second year for the event which was started by Vision for a Cure, a local nonprofit that raises funds to fight Usher syndrome.
The syndrome is a genetic disorder that is the cause of ......
September 17, 2016 @ 11:36 AM
RESTARTING MY CAREER WITH USHER SYNDROME
by Ryan Thomason August 26, 2016
Ryan Thomason is a husband, father, runner and a nerd with Usher syndrome Type 2. Ryan can be found on Twitter @Bigbrusr and Facebook as Geek Dad Report.
A lot has changed for me in the past year because of my Usher syndrome. I was working in a job with no promotion potential and a career I was unfulfilled by. My job was not accommodating of my disease, this caused me to have massive anxiety, among other things. A co-worker had verbally berated me numerous times because I accidentally bumped into him in the hallway and the company did not care. When everything came to a point where I had enough, my wife and I turned to our .........
July 29, 2016 @ 2:15 PM
Brews bring big bucks
by Brandon Adam
Marysville Globe Reporter
July 28, 2016
Brandon Adams/Staff Photo
Daniel Johnson is handed a beer sampling at Vision for a Cure’s Brewfest at Legion Park July 23
ARLINGTON— With all 700 tickets sold, Vision For a Cure's first-ever Brewfest at LegionParkJuly 23 was met with success.
"You never know how it's going to go, and it's been beyond any sort of expectation," founder Jeremy Carter said. "This is amazing. We're completely blown away."
He said $30,000 were made through ticket sales and sponsorships that day.
Four years into Vision For a Cure, Carter thought to do something different, other than the Music in the Garden, which the......
July 26, 2016 @ 6:25 PM
By Christopher Andersson North County Outlook
Ron Walcher, Skookum Brewery employee, right, pours a glass for Jerremy Davidson at the Arlington Brew Fest on July 23.
A fenced-off Legion Park in downtown Arlington was full of brewers and local residents as part of the first ever Arlington Brew Fest on July 23.
The event was put on by Vision for a Cure as a fundraiser to help fight and raise awareness for Usher syndrome.
The syndrome is the leading cause of deaf-blindness and affects roughly four out of every 100,000 in the U.S. according to the National Institute on Deafness and Other Communications Disorders.
January 21, 2016 @ 9:19 AM
written anonymously and posted March 5, 2012 http://limpingchicken.com
When I was younger, I was just Deaf.
I, like other Deaf people, held my vision sacrosanct. The idea of losing my sight was an unthinkable terror not to be contemplated for even one moment. The idea was too overwhelming. Too horrifying.
I utterly took for granted being able to see. It was my most effortless sense. My way of being in the world.
From the beginning, I have been a visual being. Vision was – my unshakable companion; my vaulted treasure; my room with a view; my blanket; my Annadin; my karabiner; my anchor; my solace and joy. Life with diminished sight was simply unimaginable.
Back then I did not know what was to come.
I knew a couple of............
May 3, 2015 @ 11:57 AM
by Leslie Thompson
I am running in the 33rd Annual Bayshore Marathon in Traverse City, Michigan, on May 23rd in Traverse City, Michigan. I am doing it because, well, I'm a little crazy. Haha.
The training and the actual race takes dedication and determination. The accomplishment of a marathon feels amazing. I'm not letting being legally blind stop me! It has effected my training though, because I don't live where it is safe to run along my road. I run on my treadmill, even my 20 mile run. My husband is very nervous for me, because he works hard to make sure I am safe, and not in situations that are .........
March 31, 2015 @ 8:45 AM
March 19, 2015 @ 8:37 AM
by Andi Horstkotte of Notions 'N Dreams www.NotionsNDreams.com
The month of March is a VERY special month for Daniel and I. It is the month that we decided to proclaim our commitment to each other in marriage between man and woman before our family, friends, and God. Committed to each other through everything. I love sharing our vows because it is a great reminder and I hope it encourages those who read it, married or not married.
"Loving what I know of you,
and trusting what I do not yet know,
I promise to be true to you through good times
and bad, for richer, for poorer, in sickness and health.
I eagerly anticipate the chance to grow together,
getting to know the man/woman
you will become,
March 10, 2015 @ 8:15 AM
by Ryan Thomason / Deaf Blind and Running
I was asked last week from someone I’ve met since starting Deaf/Blind and Running if I could express what it’s like being a parent and having Usher Syndrome.
I couldn’t help but smile at some of the examples in her life that she gave me being a parent with Usher Syndrome herself. They were nearly identical to my own. This can be an emotionally tough subject to tackle. My throat wells up when I think about how my disease has already effected my kids and their life, their future, what society has as a perception of normal. I had taken a little longer than I wanted to finish this (I was planning on doing it last Wednesday), but I think it lays out my feelings on being.........