March 31, 2015 @ 9:45 AM

Read More
March 19, 2015 @ 9:37 AM

by Andi Horstkotte of Notions 'N Dreams www.NotionsNDreams.com


The month of March is a VERY special month for Daniel and I. It is the month that we decided to proclaim our commitment to each other in marriage between man and woman before our family, friends, and God. Committed to each other through everything. I love sharing our vows because it is a great reminder and I hope it encourages those who read it, married or not married.

"Loving what I know of you,
and trusting what I do not yet know,
I promise to be true to you through good times
and bad, for richer, for poorer, in sickness and health.
I eagerly anticipate the chance to grow together,
getting to know the man/woman
you will become,
...

Read More
March 10, 2015 @ 9:15 AM

by Ryan Thomason / Deaf Blind and Running

I was asked last week from someone I’ve met since starting Deaf/Blind and Running if I could express what it’s like being a parent and having Usher Syndrome.

Batman Dad

I couldn’t help but smile at some of the examples in her life that she gave me being a parent with Usher Syndrome herself. They were nearly identical to my own. This can be an emotionally tough subject to tackle. My throat wells up when I think about how my disease has already effected my kids and their life, their future, what society has as a perception of normal. I had taken a little longer than I wanted to finish this (I was planning on doing it last Wednesday), but I think it lays out my feelings on being.........

Read More
March 1, 2015 @ 1:03 AM

February 05, 2015 12:00 am  •  


Megan Kennedy, 30, of St. Louis, with her husband 
 

She was 22 when she found out — a time when you’re figuring out the routes on life’s road map. She went from feeling like the world was full of options, to suddenly feeling hopeless and powerless.

“When you are told you are going blind, all those things you thought you were going to be come into question,” said Megan Kennedy, now 30. “Am I going to be able to do what I wanted to do?”

What made the diagnosis even scarier was that Kennedy was born profoundly deaf. As her vision shrank, she feared her happiness would surely wane along with it.

Kennedy, of ......

Read More


 

 

  

 The mission of Vision for a Cure is to raise awareness and compassion about Usher syndrome, as well as provide funding to those that are dedicated to research to find a cure.
email: 
Info@VisionForACure.com      mail:  PO Box 9  Bickleton WA 99322 
501(c)3 Tax ID# 46-4251515